Resilient Baby Born Without Full Skull Is an Empowering Beacon of Hope 두개골 없이 태어난 아이, 첫돌 넘겨

Resilient Baby Born Without Full Skull Is an Empowering Beacon of Hope

  두개골과 대뇌피질을 포함한 뇌의 상당 부분이 없는 채로 태어난 아이가 첫 돌을 넘겼다.

플로리다 주에 사는 브랜든 뷰얼과 브리타니 뷰얼 부부는 잭슨을 임신했을 당시 의사들이 모두 잭

슨이 태어나도 며칠 살지 못할 것이라며 중절 수술을 권유했지만 잭슨은 첫 돌을 넘긴 지금까지 잘

 살아있다고 밝혔다. 

브랜든 뷰얼의 페이스북에 따르면 잭슨은 'microhydranencephaly'라고 불리는 병을 앓고 있으며

이는 두개골과 대뇌피질을 포함한 뇌의 상당 부분이 없는 채로 태어나는 병으로 통계로도 잡히지

않을 만큼 희귀하다. 

브랜든 뷰얼은 사람들이 이렇게 오랫동안 잭슨이 살 줄은 몰랐을 거라면서 잭슨과 있는 동안 매일 

조금씩 밝아지는 희망의 조각을 본다고 말했다. 

잭슨이 13개월이 되는 날 브랜든 뷰얼은 페이스북에 사람들이 자기 가족에 대해 어떤 오해를 하고

있는지에 대해 썼고 뷰얼의 페이스북을 20만 명이 구독하기 시작했다. 

잭슨의 엄마 브리타니 뷰얼는 잭슨이 태어나기 전 의사들이 아마 아이가 걷지도, 말하지도 못할 거

라고 했지만 이미 잭슨은 이 모든 것 할 수 있다"고 말했다.

출처 라디오코리아 강세연 인턴기자

By Anna Gragert 

When Jaxon Buell was born with microhydranencephaly—a rare condition that prevents the skull and brain from fully forming—it seemed as though there was little hope. "In the first three weeks of Jaxon's life, when we were still with him in the NICU and there was so much uncertainty, the doctors would continuously prepare us for the worst and to get ready to take Jaxon home simply for 'comfort care,'" Jaxon's father, Brandon Buell, told The Huffington Post. "They truly did not expect him to make it very long. Yet, every day that we were with Jaxon, even from the beginning, we were seeing a small glimmer of hope, which has grown more and more each day, and it was that hope in him and the fight he always had that very naturally gave him the nickname of 'Jaxon Strong.'"

With each passing day, the young boy continues to inspire countless people through his Facebook page. Despite the many setbacks that Jaxon has faced, he approaches each new day with positivity and perseverance. "Our main focus is keeping Jaxon happy and comfortable and doing our best to give him the best life possible," said Buell. "We know better than anyone else how precious his days are with us. We also keep a broader view, and no matter what happens in the future, we know Jaxon will add something of amazing value and inspiration to this world. He has already touched so many lives, and we could not be more proud."

On September 26th, Buell added, "Tomorrow, Jax will be 13 months old. It’s hard not to think about how this all started and where we are today. Most importantly, Jaxon is still here with us, still learning, still developing, still thriving. He’s back to smiling at us, always so happy in the morning after he wakes up and takes turns looking at both Mommy’s and Daddy’s face, seemingly as if he is so excited to start another day. [...] No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime. For his life, I am better, I am blessed, I am grateful, and I am quite simply, one proud 'Addy'. I love you, son. Well done, big guy."

Jaxon Strong: Facebook | GoFundMe
via [The Huffington Post]

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