백색증을 가진 11살 쌍둥이 자매의 놀랄만한 패션 세계 11-Year-Old Twins with Albinism Are Taking the Fashion World by Storm
11-Year-Old Twins with Albinism Are Taking the Fashion World by Storm
올해 초 '디안드라 포레스트'를 만났다.
그녀는 인상적인 패션 캐리어에 부합하는 미를 재정의 해주는데 일조한 백색증을 가진 모델이다.
뉴욕출신으로 90년 생이다.
아래의 사진들은 백색증의 브라질 상파울루의 쌍둥이 자매 라라와 마라 바와르에 대한 화보들이다.
백색증(Albinism)
멜라닌 세포에서의 멜라닌 합성이 결핍되는 선천성 유전질환으로, 피부, 털, 눈에서 모두 증상이 나타나는 눈 피부 백색증과 눈에서만 증상이 나타나는 눈 백색증으로 나눈다. 눈 피부 백색증은 이상이 있는 유전자 자리에 따라 1형에서 4형으로 분류되며 혈액학적이나 면역학적 이상을 동반하는 특정 증후군들도 눈 피부 백색증을 동반할 수 있다.
[네이버 지식백과]
황기철 콘페이퍼 에디터
Ki Chul Hwang, conpaper editor
By Sara Barnes on April 11, 2017
As the fashion world continues to evolve, models whose looks fall outside of conventional beauty standards are now finding spots in the limelight. Earlier this year, we met Diandra Forrest, a model with albinism who has helped to redefine beauty with her impressive editorial fashion career. Following in her footsteps are São Paulo-based twins Lara and Mara Bawar. They’re only 11 years old, but they’ve already made waves by embracing their rare genetic condition—something that only 1 in 17,000 children are born with it. Like Forrest, Lara and Mara have done so through high-fashion photography.
The twins’ big debut came thanks to photographer Vinicius Terranova. Through his series called Flores Raras (translated, it means Rare Flowers), he showcased Lara and Mara’s unique attributes. “My point is to analyze how being uncommon is far from being negative,” he writes, “Actually, when you possess a different, therefore rare, trait this feature makes you more beautiful and special, never less. Besides its plea to the power of diversity, it represents the encounter with their sublime beauty.”
The twins are confident in their own skin—something that’s a challenge for any kid their age, no matter how they look. “We feel albinism is pretty,” Lara told Metro, “we love our hair, eye color and skin tone.” Mara adds, “Growing up like this was amazing, we love being different and are happy with our unique beauty.”
You can follow their burgeoning careers—along with their older sister, Sheila—through Instagram.
Meet 11-year-old twins Lara and Mara Bawar who were born with albinism.
They’re taking the fashion world by storm as models with albinism, showcasing their unique beauty and confidence.
The twins with their older sister, Sheila.
“We feel albinism is pretty,” Lara says, “we love our hair, eye color and skin tone.”
Photo credit: Anna Mascarenhas
Photo credit: Anna Mascarenhas
Lara and Mara Bawar: Instagram
h/t: [Bored Panda, Brightside]
All images via Vinicius Terranova unless otherwise stated.
